Involve Australia asks funders to require community involvement in all grant opportunities in recently published recommendations for health and medical research funders and institutes.

How do you measure the value of a genomic test? It depends who you are, of course. While providing a diagnosis might be paramount for a patient, for a clinician it might be managing the condition. And for a government department it might be cost savings. 

More than 1000 submissions have been made to the Federal Government’s review of laws around the use of consumers’ genetic test results by life insurance companies. 

Australian Genomics developed a report for the Medical Research Future Fund, detailing priorities for pharmacogenomics research going forward.

A major study into the meaningful involvement of community members in genomic research has culminated in the publication of a comprehensive set of guidelines for researchers

National legislation is required to protect people against life insurance discrimination based on their genetic results.

A suite of best-practice tools developed by GeneEQUAL will support health professionals to provide inclusive, person-centred and respectful genetic health care for people with intellectual disability.

The impact of Australia’s national initiative to accelerate the use of genomics in mainstream healthcare has been captured in a report published in the American Journal of Human Genetics.

The ethical issues surrounding genomic testing are often complex and varied. A Question of Ethics is a four-part blog series by Australian Genomics, in collaboration with the Biomedical Ethics Research Group at the Murdoch Children’s Research Institute.